|
We are a grass-roots group,
started in 1999, who call
ourselves "Fuchs'
Friends". Our numbers
are growing every day as we meet
new people who have just
discovered their corneal
dystrophy problem.
Originally a few of us found one
another on the Internet because
one of us (Dorothy) had a
personal website
with a page devoted to her own experience with Fuchs' Dystrophy. We
found that we were active and productive people who wanted to
contribute to bettering the lives of people who suffer from Fuchs' and
other vision afflictions. Fortunately, one of our members (Bob) had
considerable expertise in web design and Internet searching. So we
began to gather links to further information and realized we needed
our own domain name and website.
We formed a private bulletin board to share our experiences.and give
one another support. You can join this private bulletin board at no
cost and receive valuable information to help you with this affliction.
This private board has grown to about 2100 members in more than 60
countries and well over 500 of our members have had a corneal
transplant in one or both eyes.
The message board has become an information and linkage portal for
finding information and highly qualified specialists. It is also a place
where Fuchs' sufferers and medical experts can meet for support and
information exchange, while coping with this disease.
This private bulletin board supports:
Email,
Mail lists,
Uploaded files from members
A referral data base of specialists who are recommended by their
Fuchs’ patients.
Our Members’ Only web site provides tips for coping, computer tips for better reading, stories about members’ corneal transplants and
journeys from no or poor vision through transplant to usable or even
great vision.
Please be sure to also visit our Charitable Foundation:
The Corneal Dystrophy Foundation
for more information and stories and to find out more about us.
|
