|
We started as a grass-roots group
in 1999, who call ourselves
"Fuchs' Friends".
Our numbers are growing every day
as we meet new people who
have just discovered their
corneal dystrophy problem. We
currently have nearly 2000 active
members who represent over 60
countries.
We formed a private bulletin board
to share our experiences.and give
one another support. You
can join this private board
free
and receive valuable information to help you with this affliction.
This private site supports:
E-mail,
Mail lists,
Uploaded files from members
A referral data base of specialists who are recommended by their
Fuchs’ patients.
Our Fuchs’ Friends private bulletin board now has almost 2000 members
and over 320 of past and present members have had a transplant on at
least one eye. More than 4800 people have, at one time or another,
joined our group and received education, inspiration and a vision of
better sight.
With a world-wide mix of members from more than 65 countries, the
bulletin board has become an information and linkage portal for patiens
to search information they seek. We also provide a patient-generated
reference list of qualified specialists. Member-patient recommendation
is the criteria for listing. It is also a place where Fuchs' sufferers and
medical experts can meet for support and information exchange, while
coping with this disease.
Our public websites receive over 8000 individual visitors per month who
are searching for answers to their Fuchs’ Corneal Dystrophy questions
|
