|
We
started
as a
grass-roots
group
in
1999,
who
call
ourselves
"Fuchs'
Friends".
Our
numbers
are
growing
every
day
as we
meet
new
people
who
have
just
discovered
their
corneal
dystrophy
problem.
We
currently
have
nearly
2000
active
members
who
represent
over
60
countries.
We
formed
a
private
bulletin
board
to
share
our
experiences.and
give
one
another
support.
You
can
join
this
private
board
free
and receive valuable information to help you with this affliction.
This private site supports:
E-mail,
Mail lists,
Uploaded files from members
A referral data base of specialists who are recommended by their
Fuchs’ patients.
Our Fuchs’ Friends private bulletin board now has almost 2000 members
and over 320 of past and present members have had a transplant on at
least one eye. More than 4800 people have, at one time or another,
joined our group and received education, inspiration and a vision of
better sight.
With a world-wide mix of members from more than 65 countries, the
bulletin board has become an information and linkage portal for patiens
to search information they seek. We also provide a patient-generated
reference list of qualified specialists. Member-patient recommendation
is the criteria for listing. It is also a place where Fuchs' sufferers and
medical experts can meet for support and information exchange, while
coping with this disease.
Our public websites receive over 8000 individual visitors per month who
are searching for answers to their Fuchs’ Corneal Dystrophy questions
|
